hrp0097p2-42 | Adrenals and HPA Axis | ESPE2023

Exploring the Experiences of Parents of Children with Congenital Adrenal Hyperplasia: a study in Developing Country

Utari Agustini , Dewi Ariani Mahayu , Galih Panunggal Damianus , L Claahsen-van Der Grinten Hedi , MH Faradz Sultana , Ediati Annastasia

Keywords: Congenital Adrenal Hyperplasia, Parent’s experience, Focus Group DiscussionBackground: Congenital Adrenal Hyperplasia (CAH) leads to many unseen social burdens for parents, including ambiguous genitalia (in girls), lifelong use of medication, including stress dosing, social and psychological pressure, and stigmatization. This study aimed to investigate various lived experiences of parents caring for their...